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  • Biff and The Fatigue Monster
  • Millions Missing 2019
  • Surviving a Crash When You Have a Chronic Illness
  • Grief and Acceptance in Chronic Illness
  • The Realities of ‘Back to School’ in a Chronic Illness House
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    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
    October 20, 2017
    The Politics of ‘Labels’ in Schools and the NHS
    August 15, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    Why Is School Stressful When Your Child Has A Medical Need?
    February 16, 2017
    Working With School When Your Child Has Ehlers-Danlos Syndrome (EDS) – 5 TOP TIPS
    July 1, 2016
    Invisible Illness or Disability – A Quick Parents Guide to SEND and the Law
    July 1, 2016
    Dear headteacher…
    June 18, 2016
    My Teen’s M.E. Diagnosis – Three Years On
    June 16, 2020
    Biff and The Fatigue Monster
    February 14, 2020
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    Top Tips for being a Professional Patient
    April 4, 2018
    7 Top Tips to survive a crash and still be mum
    February 11, 2018
    95 Things NOT to Say to Someone with EDS or HSD
    December 20, 2017
    Biff and The Fatigue Monster
    February 14, 2020
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    7 Top Tips to survive a crash and still be mum
    February 11, 2018
    Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
    October 20, 2017
    The Politics of ‘Labels’ in Schools and the NHS
    August 15, 2017
    The Reality of Fatigue
    May 30, 2017
    Why Is School Stressful When Your Child Has A Medical Need?
    February 16, 2017
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    Top Tips for being a Professional Patient
    April 4, 2018
    Burnout – 8 Signs of Caregiver Burnout
    July 31, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    Brunel Physiotherapy Lecture – A Round Up
    May 15, 2017
    EDS Kids Handbook – The Memes
    May 2, 2017
    Life Swaps – Managing Chronic Illness
    November 9, 2016
    Childhood Pain
    October 17, 2016
    The A-Z of Ehlers-Danlos Syndrome (EDS)
    May 17, 2018
    The A-Z of Ehlers-Danlos syndrome (EDS) The Memes
    May 17, 2018
    95 Things NOT to Say to Someone with EDS or HSD
    December 20, 2017
    The Princess and the Pea
    June 19, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    #ZebraDay 2017
    May 19, 2017
    EDS Kids Handbook – The Memes
    May 2, 2017
    Raising EDS Kids
    November 21, 2016
    Falls
    September 16, 2016
    I’m fine
    August 23, 2016
    Pilates in EDS and CMT
    August 5, 2016
    Pain
    February 10, 2016
    Children’s Physiotherapy
    November 20, 2015
    Dear CMT… A personal letter to my neuromuscular disease
    September 10, 2015
    Shoes
    July 25, 2015
    Acceptance – Learning To Trust The Journey
    July 1, 2015
    My Teen’s M.E. Diagnosis – Three Years On
    June 16, 2020
    Biff and The Fatigue Monster
    February 14, 2020
    Millions Missing 2019
    May 9, 2019
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    Grief and Acceptance in Chronic Illness
    February 25, 2019
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    The A-Z of Ehlers-Danlos Syndrome (EDS)
    May 17, 2018
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Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
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Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

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Life Swaps – Managing Chronic Illness
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Life Swaps – Managing Chronic Illness

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Childhood Pain
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Childhood Pain

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Hello Forty!
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Hello Forty!

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Falls
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Falls

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Why The Zebra? Why The Zebra?
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M.E.

My Teen’s M.E. Diagnosis – Three Years On

By Sarah Wells June 16, 2020

I’m not usually one for marking anniversaries, not sad ones anyway. But, this week marks three years since the the Grenfell Tower fire which for us marks three years since my son was diagnosed with Myalgic Encephalomyelitis (M.E.)

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Blog

Biff and The Fatigue Monster

By Sarah Wells February 14, 2020

The Biff, Chip and Kipper Stories through the eyes of a chronic illness mum.

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Blog

Millions Missing 2019

By Sarah Wells May 9, 2019

Grab a cuppa and I’ll attempt to explain why we are supporting the #MillionsMissing protest on Sunday May 12th 2019. My son has been diagnosed with Myalgic Encephalomyelitis/…

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Management

Surviving a Crash When You Have a Chronic Illness

By Sarah Wells February 25, 2019

When you live with chronic illness ‘crashes’ are inevitable no matter how hard you try to avoid
them. Getting the balance between doing too much or too little is like walking a tightrope. Here are my top tips to spot and to manage crashes.

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M.E.

Grief and Acceptance in Chronic Illness

By Sarah Wells February 25, 2019

A little over three years ago I wrote about acceptance being a huge part of my chronic illness journey. Little did I know when I wrote the article that this trust would be tested as my oldest child’s health was about to spiral into a rapid decline.

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Blog

The Realities of ‘Back to School’ in a Chronic Illness House

By Sarah Wells September 17, 2018

New school year, new uniform, new adventures. It’s the day before school starts back, this year one of my children, Charlie, will be attending a brand new high…

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Blog

Biff, Chip and Kipper – The Dance Show

By Sarah Wells June 28, 2018

The Biff, Chip and Kipper Stories through the eyes of a chronic illness mum.

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Blog

The A-Z of Ehlers-Danlos Syndrome (EDS)

By Sarah Wells May 17, 2018

From adrenaline to Zebra and everything in-between.

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Blog

The A-Z of Ehlers-Danlos syndrome (EDS) The Memes

By Sarah Wells May 17, 2018

The A-Z of Ehlers-Danlos syndrome (EDS) in pictures.  From adrenaline highs, mast cells and slipping rib syndrome to the zebra mascot. Do you know everything about EDS? Please…

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Management

Top Tips for being a Professional Patient

By Sarah Wells April 4, 2018

Help wanted. Hours must be flexible, pay poor. This job will interfere with your social life. Those with a morbid fear of doctors need not apply. The sheer…

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  • About

    Hello, my name is Sarah. I’m a mum, wife, writer, blogger, advocate and occasional public speaker. This is my blog, where I share our life with the world, my passion for raising awareness of EDS, CMT and ME and how I raise my children to be happy with their perfect imperfections. My Stripy Life is here to provide you with regular fresh ideas about chronic health, wellness and navigating the ‘systems’.

    True strength is not just about overcoming obstacles it is helping others to overcome them. This is the true essence of My Stripy Life.

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