The Memes from the upcoming ebook by Kendra Neilsen Myles and Sarah Wells, with a special section on Vascular EDS written by Deborah Roach. A sneak peak into the Top Tips section of the book. Share far and wide, we are #Stronger2Gether. SaveSave SaveSave bookfamilyQuote Prev Post Why Is School Stressful When Your Child Has A Medical Need? February 16, 2017 Next Post My Love, Hate Relationship With Tea May 12, 2017 Related Posts My Teen’s M.E. Diagnosis – Three Years On June 16, 2020 Biff and The Fatigue Monster February 14, 2020 Millions Missing 2019 May 9, 2019 2 Comments Manja Bitterlin 3 years ago Reply Hi Hi, I started a foundation for EDS awareness in the Netherlands and I will give presentations on schools because of the children with this invisible illness. I learned and read a lot on your site and all about EDS. I am a mother of 2 children, one (daughter) has also EDS and so have I. I am starting this totally new and can use tips and tricks. The meaning is that all the teachers will be aware of EDS and I want to help them to recognize the first signs and helpt these children. Kind regards Manja Bitterlin Sarah Wells Post Author 3 years ago Reply Hi, how brilliant. My mission is the same as yours, I would love for all teachers to understand the invisibility of this illness and how to help. This month my two youngest children did their own presentation in school to the staff and pupils about EDS to raise awareness and understanding. They were fantastic. And I have actually started outlining a book on this very area. I love your profile picture! Is it you? XXX Write A Comment Cancel Reply Yes, add me to your mailing list. This site uses Akismet to reduce spam. Learn how your comment data is processed.