Hello, my name is Sarah. I’m a mum, wife, writer, blogger, advocate and occasional public speaker. This is my blog, where I share our life with the world, my passion for raising awareness of Ehlers-Danlos syndrome and Charcot Marie Tooth disease and how I raise my children to be happy with their perfect imperfections. I started My Stripy Life to provide you with regular fresh ideas about chronic health, wellness and navigating the ‘systems’.
True strength is not just about overcoming obstacles it is helping others to overcome them. This is the true essence of My Stripy Life.
So a little more about me…
I’m a daughter, a sister, a mum, a friend, a wife. I’m definitely addicted to tea. I love a good book… and to tell a story. I’m born in the sign of Libra. I love to eat good food (all gluten free). This Christmas I developed a taste for champagne cocktails. White wine makes me drunk very quickly.
I’m an educator and I love to learn. I’m a problem solver. I thrive on a challenge. I am a lover not a fighter (but I can stick up for myself when I need to). I can talk for England! I like to walk in the woods and spot butterflies. I have learnt to love Pilates. If I’m honest I’m slightly addicted to Facebook and Twitter is quickly following suit.
I have no agenda. I am an open book. I look at the world through rose tinted glassed. I love to dance around the front room with my children and will make the most of it before it starts to embarrass them. I love to sing really loud in the car. I am forever tripping over dogs toys, picking up (odd) socks and chasing the dog to retrieve table tennis balls.
I would love to change the world. I am and EDS and CMT warrior. I sing when I dislocate because it helps with the pain -try it! Some days I run out of spoons. I am afraid of things becoming hard for my babies. I find writing on the blog a surprisingly cathartic experience. I believe that laughing and crying at the same time is good for the soul. I try to be a good friend… a good wife… a good mum… and to teach my babies to be happy with their perfect imperfections.
Sarah studied at St Marys University college, Twickenham, where she read Education and Biology and graduated with first class honours. After working for a number of years as a primary school teacher she had to leave the profession that she loved due to her health and to care for her children. Since that point she has been kept busy volunteering to run the pre-school service at her local church and with governance in school. She now keeps her mind active with the family business and has recently trained in elements of SEN law.
In early 2015 Sarah started writing about her families journey at My Stripy Life. Over he next few years she dedicated her time to researching and raising awareness of Ehlers-Danlos syndrome, Charcot Marie Tooth disease, Postural Orthostatic Tachycardia Syndrome and Myalgic Encephalomyelitis, which has led to some great opportunities. This includes; advocating in schools, presenting in hospitals and universities, supporting individuals and families, writing regularly for different charity magazines, becoming a patient partner at RNOH Stanmore as part of their transformation service, having published articles on The Mighty Site and in the book Our Stories of Strength – Living with Ehlers-Danlos syndrome.
Sarah grew up in West London, England but now lives in Wiltshire with her husband David and their three beautiful children Alfie, Charlie and Rubie and a naughty French bulldog called Vinnie. She has a passion for good food (all gluten free), a nice British cup of tea, keeping her mind and body active with pilates, spending quality time with her family and inspiring others to approach the management of their health with a positive attitude. To be happy with their perfect imperfections.
If you would like to get to get in touch with Sarah about advocacy or speaking in schools/ hospitals / universities then please get in touch please contact her by email firstname.lastname@example.org or by completing the form below to discuss your needs.
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