Help wanted. Hours must be flexible, pay poor. This job will interfere with your social life. Those with a morbid fear of doctors need not apply. The sheer…
££££ Terminal 5, London Heathrow Airport, Hounslow, TW6 2GD +44 2035899658 Awarded 3 AA Rosettes, La Belle Epoque at Sofitel London Heathrow is the airport’s only fine-dining restaurant. Gourmet…
Caring for a sick kid or kids when you have your own chronic illnesses to deal with can be one of the hardest things you will ever have…
At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that…
Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and…
I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress. Different schools, different reasons, different children. I’m in the midst…
Last month we attended an appointment with one of our children where the consultant opened, without knowing our family, by saying that he didn’t believe in their hEDS…
The explosion of social media over the last 12 years has opened doors for people in many ways; It has the power to connect like minded people all…
I have three children, all affected differently with elements of Hypermobility Spectrum disorder (HSD), Hypermobile Ehlers-Danlos syndrome (hEDS) and Charcot Marie Tooth disease (CMT) and new to the…
