Thirteen years ago I gave birth to my first child, as he enters adolescence (and I wonder how that could be possible) I realise a lot has changed…
Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives…
So, you’ve been diagnosed with a rare disease, perhaps you are unable to do some of the things that you used to be able to do, or you…
My kids have pain. It’s real. One of the hardest things for me as a mother is to see them in pain and not be able to magic…
Somebody once told me that the 40’s were the best years of their lives. This was way back when I couldn’t imagine being that old! It seems like…
Most people remember falling as a child, even if you have to stretch your mind a little to think that far back. Scabby knees, tripping over your own…
I’m fine. I use this reply all the time when people casually ask me how I am. Is it the truth? What does ‘I’m fine’ really mean… (These…
My Pilates journey. At the medical conferences that I attend, be it related to Charcot Marie Tooth disease (CMT), Ehlers-Danlos syndrome (EDS) or for EDS kids, people ask the experts…
I’ve posted before regarding school. I knew it was a very emotive issue in our house but I was overwhelmed by the passionate responses from other people. My…
