Most people remember falling as a child, even if you have to stretch your mind a little to think that far back. Scabby knees, tripping over your own…
I’m fine. I use this reply all the time when people casually ask me how I am. Is it the truth? What does ‘I’m fine’ really mean… (These…
My Pilates journey. At the medical conferences that I attend, be it related to Charcot Marie Tooth disease (CMT), Ehlers-Danlos syndrome (EDS) or for EDS kids, people ask the experts…
I have lived with pain for as long as I can remember, it’s now chronic, it’s never going away. I have Charcot Marie Tooth disease, a neuromuscular disease…
This week I was asked by my children’s physiotherapist if I could get my children involved in little bit of research on their behalf. They will be presenting…
Dear CMT… When you first came into my life it was hard. Those were the darkest and longest two years of my life. I got up every morning…
Shoes, shoes, shoes… Shoes are a girls best friend, you can never have enough, they can make you feel ten feet tall, on top of the world. It’s…
The road to acceptance has been a bumpy one. When I was first diagnosed with CMT I grieved for a long time. My life at this time was…
I was diagnosed with CMT by accident after a complication when I had my first baby left my in pain, almost unable to walk. When investigating the cause…
