Along with my zebra stripes here is a list of the other lovely symptoms that I have collected… There is a lot going on here, I have probably…
An open letter to teachers of children with invisible illness I know that teachers want to do the best for my children, I can see it in their…
An Open Letter To Teachers of Children With Invisible Illness Writing my latest blog entry has been an emotional and cathartic experience. It is based on supporting my…
I’m not going to dwell on the detailed science involved with EDS and CMT, the genetics behind the conditions so to speak. I may get into that all…
This week one of my daughters school friends had a diagnosis of type1 diabetes. He’s just 5 and has been her boyfriend since nursery. I can not begin…
