From adrenaline to Zebra and everything in-between.
The A-Z of Ehlers-Danlos syndrome (EDS) in pictures. From adrenaline highs, mast cells and slipping rib syndrome to the zebra mascot. Do you know everything about EDS? Please…
At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that…
[su_dropcap style=”simple”]T[/su_dropcap]he story tells of a prince who wants to marry a princess, but is having difficulty finding a suitable wife. One stormy night a young woman drenched…
In April I had a call from the head of my children’s primary school to ask if my two youngest children (who attend the school) would like to…
Today all around the world members of the Ehlers-Danlos community and their friends and family will be wearing their stripes to raise awareness of the Ehlers-Danlos syndromes and…
The Memes from the upcoming ebook by Kendra Neilsen Myles and Sarah Wells, with a special section on Vascular EDS written by Deborah Roach. A sneak peak into…
Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives…
I’m fine. I use this reply all the time when people casually ask me how I am. Is it the truth? What does ‘I’m fine’ really mean… (These…
