My Relationship With ‘it’ Looking back, way back it has always been there, lurking in the background ready to pounce but the first real memory I have of it really…
This post sums up the whole process of getting my daughter her wheelchair, from referral to her first outing and all the bits in-between. The practicalities and emotions…
I have lived with pain for as long as I can remember, it’s now chronic, it’s never going away. I have Charcot Marie Tooth disease, a neuromuscular disease…
This week I was asked by my children’s physiotherapist if I could get my children involved in little bit of research on their behalf. They will be presenting…
I fake my EDS symptoms all the time. Every day. For as long as I can remember. It is second nature, it’s why I am so good at…
I was diagnosed with CMT by accident after a complication when I had my first baby left my in pain, almost unable to walk. When investigating the cause…
Before Before I was accepted on to the Pain Rehabilitation Programme at Stanmore I knew that something had to change. Life was getting gradually harder, pain was steadily…
