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  • Biff and The Fatigue Monster
  • Millions Missing 2019
  • Surviving a Crash When You Have a Chronic Illness
  • Grief and Acceptance in Chronic Illness
  • The Realities of ‘Back to School’ in a Chronic Illness House
  • Biff, Chip and Kipper – The Dance Show
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    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
    October 20, 2017
    The Politics of ‘Labels’ in Schools and the NHS
    August 15, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    Why Is School Stressful When Your Child Has A Medical Need?
    February 16, 2017
    Working With School When Your Child Has Ehlers-Danlos Syndrome (EDS) – 5 TOP TIPS
    July 1, 2016
    Invisible Illness or Disability – A Quick Parents Guide to SEND and the Law
    July 1, 2016
    Dear headteacher…
    June 18, 2016
    My Teen’s M.E. Diagnosis – Three Years On
    June 16, 2020
    Biff and The Fatigue Monster
    February 14, 2020
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    Top Tips for being a Professional Patient
    April 4, 2018
    7 Top Tips to survive a crash and still be mum
    February 11, 2018
    95 Things NOT to Say to Someone with EDS or HSD
    December 20, 2017
    Biff and The Fatigue Monster
    February 14, 2020
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    7 Top Tips to survive a crash and still be mum
    February 11, 2018
    Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
    October 20, 2017
    The Politics of ‘Labels’ in Schools and the NHS
    August 15, 2017
    The Reality of Fatigue
    May 30, 2017
    Why Is School Stressful When Your Child Has A Medical Need?
    February 16, 2017
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    Top Tips for being a Professional Patient
    April 4, 2018
    Burnout – 8 Signs of Caregiver Burnout
    July 31, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    Brunel Physiotherapy Lecture – A Round Up
    May 15, 2017
    EDS Kids Handbook – The Memes
    May 2, 2017
    Life Swaps – Managing Chronic Illness
    November 9, 2016
    Childhood Pain
    October 17, 2016
    The A-Z of Ehlers-Danlos Syndrome (EDS)
    May 17, 2018
    The A-Z of Ehlers-Danlos syndrome (EDS) The Memes
    May 17, 2018
    95 Things NOT to Say to Someone with EDS or HSD
    December 20, 2017
    The Princess and the Pea
    June 19, 2017
    Ehlers-Danlos Syndrome (EDS) School Assembly Presentation
    June 6, 2017
    #ZebraDay 2017
    May 19, 2017
    EDS Kids Handbook – The Memes
    May 2, 2017
    Raising EDS Kids
    November 21, 2016
    Falls
    September 16, 2016
    I’m fine
    August 23, 2016
    Pilates in EDS and CMT
    August 5, 2016
    Pain
    February 10, 2016
    Children’s Physiotherapy
    November 20, 2015
    Dear CMT… A personal letter to my neuromuscular disease
    September 10, 2015
    Shoes
    July 25, 2015
    Acceptance – Learning To Trust The Journey
    July 1, 2015
    My Teen’s M.E. Diagnosis – Three Years On
    June 16, 2020
    Biff and The Fatigue Monster
    February 14, 2020
    Millions Missing 2019
    May 9, 2019
    Surviving a Crash When You Have a Chronic Illness
    February 25, 2019
    Grief and Acceptance in Chronic Illness
    February 25, 2019
    The Realities of ‘Back to School’ in a Chronic Illness House
    September 17, 2018
    Biff, Chip and Kipper – The Dance Show
    June 28, 2018
    The A-Z of Ehlers-Danlos Syndrome (EDS)
    May 17, 2018
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  • All About Sarah
  • Why the Zebra?
  • CMT
    • CMT Posts
    • CMT Symptoms
    • CMT Diagnosis
    • CMT Types
  • EDS
    • EDS Posts
    • EDS Symptoms
    • EDS Diagnosis
    • EDS Types
    • Hypermobility Spectrum Disorder (HSD)
Chronic Illness Is A Rollercoaster Ride You Can Never Get Off
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Chronic Illness Is A Rollercoaster Ride You Can Never Get Off

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Life Swaps – Managing Chronic Illness
Blog

Life Swaps – Managing Chronic Illness

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Childhood Pain
Blog

Childhood Pain

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Hello Forty!
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Hello Forty!

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Falls
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Falls

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Why The Zebra? Why The Zebra?
New? Start Here New? Start Here
About Me About Me
Blog

The Reality of Fatigue

By Sarah Wells May 30, 2017

Fatigue. Chronic debilitating fatigue. Now I don’t mean being tired, tiredness and fatigue are very different things. We all get tired, our lives are busy, we put far…

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Blog

#ZebraDay 2017

By Sarah Wells May 19, 2017

Today all around the world members of the Ehlers-Danlos community and their friends and family will be wearing their stripes to raise awareness of the Ehlers-Danlos syndromes and…

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Blog

Brunel Physiotherapy Lecture – A Round Up

By Sarah Wells May 15, 2017

Brunel University – Common (or not so common) Paediatric Conditions Last May I had the great opportunity of being welcomed to Brunel university to co-present a lecture on…

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Blog

My Love, Hate Relationship With Tea

By Sarah Wells May 12, 2017

The great British cup of tea… I have to admit as I sit here cup in hand, I am slightly addicted.  Meeting up with my with my girl…

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Blog

EDS Kids Handbook – The Memes

By Sarah Wells May 2, 2017

The Memes from the upcoming ebook by Kendra Neilsen Myles and Sarah Wells, with a special section on Vascular EDS written by Deborah Roach.  A sneak peak into…

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Blog

Why Is School Stressful When Your Child Has A Medical Need?

By Sarah Wells February 16, 2017

Over the Iast couple of weeks I have had different conversations with people about their child’s school.Two families, at totally different schools, (and different schools to all my…

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Blog

8 Types Of People You Meet In Hospital Waiting Rooms

By Sarah Wells January 28, 2017

I spend far to much time in hospital waiting rooms, people watching helps to pass the time, keeps me sane. Somewhere between booking in and hearing your name…

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Blog

Dear Younger Self

By Sarah Wells January 16, 2017

Thirteen years ago I gave birth to my first child, as he enters adolescence (and I wonder how that could be possible) I realise a lot has changed…

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Blog

Raising EDS Kids

By Sarah Wells November 21, 2016

Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives…

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Blog

Life Swaps – Managing Chronic Illness

By Sarah Wells November 9, 2016

So, you’ve been diagnosed with a rare disease, perhaps you are unable to do some of the things that you used to be able to do, or you…

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  • About

    Hello, my name is Sarah. I’m a mum, wife, writer, blogger, advocate and occasional public speaker. This is my blog, where I share our life with the world, my passion for raising awareness of EDS, CMT and ME and how I raise my children to be happy with their perfect imperfections. My Stripy Life is here to provide you with regular fresh ideas about chronic health, wellness and navigating the ‘systems’.

    True strength is not just about overcoming obstacles it is helping others to overcome them. This is the true essence of My Stripy Life.

    Read More
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Self care isn't all about insta worthy views from Self care isn't all about insta worthy views from your walk or a bubble bath that you can get lost in (although we do like to see those things). It is about recognising that you need to take that time for you.
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💡Here are 10 things you can do this week self care to get you started...
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✅ Unplug from all tech for the evening, switch off and do something totally different.
✅ Create a Yay list, think of all the things at the end of the day that made you happy today and write them down. A call from a friend or learning something new.
✅ Have some me time - from sitting with your favourite book, or curled on the sofa in front of the fire. Giving your mind time to switch off will help you reboot and reduce stress.
✅ Get outside in nature especially in motion, it boosts mood, sharpens thinking, and makes you feel calmer and more generous.
✅ Exercise isn't just for losing weight, it is a powerful mental health tool and keeps you strong and healthy too.
✅ Laugh with your friends, it releases endorphins and builds relationships. Can't meet up for real? try a virtual chat over zoom.
✅ Unfollow people who zap your energy and bring you down. We all spend so much time on social media make your feed full of people that lift you up.
✅ Adding tea to your morning routine can help support a healthy heart. Research shows that drinking green tea regularly may lower your LDL (“bad”) cholesterol levels.
✅ Clear out the clutter. Cluttered environments are linked with stress and lower self control.
✅ Stash the biscuit tin and have an overflowing fruit bowl instead. you'll be more likely to reach for an apple than the Hob Nobs.
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If you want more tips like this, weekly challenges to keep you moving forwards and a bit of fun! Head over to The Thrive Tribe on Facebook and be part of our amazing community. Plus your chance to WIN 1 hour of personal 1:1 coaching with me in January. https://www.facebook.com/groups/sarahwellsthethrivetribe
Exciting Giveaway! ⠀ The Thrive Tribe is open!! Exciting Giveaway! 
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The Thrive Tribe is open!! I would love to invite you to be founding members of a brand new Facebook group. 
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It is a safe place for women with long term, chronic illness or disability (or those who are carers of kids with chronic illness). It is a space to be you, to be honest that you want more than this, to be honest about not knowing how to start.  A place where we can lift each other up and support each other.  To share our story and inspire each other with our wins. 
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It's about understanding that life can be tough but also that we can do hard things. About recognising your own unique superpowers! To feel like you belong in a community that has your back and wants to lift each other up.
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This month if you join the group I am offering you the chance to win 1 hour 1:1 NLP coaching with me, to be taken in January.  All you have to do is follow the link and join the group, join in! Names will be automatically entered and drawn on the 1st Jan and the winner posted in the group. 
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See you over there.  https://www.facebook.com/groups/sarahwellsthethrivetribe/
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If you know someone who might be interested please share the link or check out the website. https://sarahwellslifecoach.com/
Where did Sarah Wells Coaching start? How did I ge Where did Sarah Wells Coaching start? How did I get here? Right here, right now! Where would I be if I had made a different choice along the way? Like not being brave enough to hit post on the first blog post or being too scared to speak at Brunel Uni?
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For me coaching was born out of my blog and the difference that I could see that was making in the world, through sharing my story others knew that they were not alone and got strength to fight their own battles and make positive changes in their own lives, especially for their kids.
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The blog itself was born out of fighting for my children's rights in health and education and realising that the systems in place to help them were often treacherous to navigate and not at all for the faint hearted.
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My kids health conditions are hereditary passed on from me, (although I was not formally diagnosed with either until I had my children). So I guess it started with me, and my desire to make a difference, to not want to accept that my life is over because I had been diagnosed with a couple of life long conditions. My desire to find a new me amidst the turmoil that a significant diagnosis brings to a family and my desire to teach my kids how to be resilient, that they can be amazing people and have amazing lives whatever gets thrown at them.
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Let me know if you have followed me here from the blog @mystripylife
⁣

#pain #fatigue #dislocations #potssyndrome #ehlersdanlossyndrome #charcotmarietooth #mecfs #lifecoaching #nlpcoaching #chronicillness #chronicwellness #chronicillnesscoach #whatisyourwhy #send #school #advocatelikeamother
One of my favourite things is to get up before the One of my favourite things is to get up before the house wakes on an autumn morning and watch the sun rise with a cup of tea at the kitchen table.  The sky here is amazing, I never appreciated it living in a city. I’m actually slightly obsessed  #nofilter
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It gives me space to think and time to just be.  Without being mum, wife, PA, cleaner, taxi driver or chief dog sick cleaner upper (we have a sick dog). 
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What is your happy place? 
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#selfcare #mindfulness #spacetothink #lifecoach #lifecoachingtips #lifecoachingforwomen #sunrise #wiltshirelife #chronicallyliving #chronicillness #chronicwellness  #nlpcoach #nlpmasterpractitioner
I am so excited to show you the new website! ⁣ I am so excited to show you the new website! 
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So this is what I've been working on... I'm actually quite proud of my non-techy self and have enjoyed the whole process!  But, I need to stop procrastinating about the finer details and actually show the world the positive impact that coaching and NLP can have on their life and their health. 
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Dive in, learn about my story, the whole coaching process and find out what NLP brings to the party! Also, why I'm so passionate about empowering people to make positive change in their lives. 
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There isn't a better time than now.  What are you waiting for?
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Any questions hit me with an email, FB Message or a DM on Instagram - I will be happy to answer any of your questions.
⁣
Let me know what you think! 
⁣
Be well,
⁣
Copy and paste ⬇️ or follow the link in the bio 
https://sarahwellslifecoach.com/ 
⁣
#nlp #lifecoaching #nlpmaster #chronicwellness #chronicallyawesome #chronicallysuccessful #chronicallylivinglife #pain #fatigue #autonomicdysfunction #ehlersdanlos #charcotmarietooth #mecfs #potssyndrome #adhdwomen #lifecoachingwebsite
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