New school year, new uniform, new adventures. It’s the day before school starts back, this year one of my children, Charlie, will be attending a brand new high…
The Biff, Chip and Kipper Stories through the eyes of a chronic illness mum.
The A-Z of Ehlers-Danlos syndrome (EDS) in pictures. From adrenaline highs, mast cells and slipping rib syndrome to the zebra mascot. Do you know everything about EDS? Please…
Help wanted. Hours must be flexible, pay poor. This job will interfere with your social life. Those with a morbid fear of doctors need not apply. The sheer…
Caring for a sick kid or kids when you have your own chronic illnesses to deal with can be one of the hardest things you will ever have…
Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and…
I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress. Different schools, different reasons, different children. I’m in the midst…
Last month we attended an appointment with one of our children where the consultant opened, without knowing our family, by saying that he didn’t believe in their hEDS…
I have three children, all affected differently with elements of Hypermobility Spectrum disorder (HSD), Hypermobile Ehlers-Danlos syndrome (hEDS) and Charcot Marie Tooth disease (CMT) and new to the…
