This post sums up the whole process of getting my daughter her wheelchair, from referral to her first outing and all the bits in-between. The practicalities and emotions…
We all know how hard it is when someone we love is poorly, when your child is throwing up with a bug, when they are hurt and upset…
I loved my job. In fact it wasn’t a job to me. It was more like a vocation, I enjoyed getting up on the morning and going to…
I’ve been reading a lot lately about autism and the ability of autistic children to hold it together over the course of a day only to explode as…
This week I was asked by my children’s physiotherapist if I could get my children involved in little bit of research on their behalf. They will be presenting…
Dear CMT… When you first came into my life it was hard. Those were the darkest and longest two years of my life. I got up every morning…
I had the great privilege of being invited to my local Child Development Centre to talk to a bunch of professionals ranging from students to speech and language…
I had the great privilege of being invited to my local Child Development Centre. I had one hour in a room with a range of professionals from students…
I question, should we even try to fight for a diagnosis or better care when we have a rare disease… I have been thinking carefully over the last…
