The road to acceptance has been a bumpy one. When I was first diagnosed with CMT I grieved for a long time. My life at this time was…
Before Before I was accepted on to the Pain Rehabilitation Programme at Stanmore I knew that something had to change. Life was getting gradually harder, pain was steadily…
I question, should we even try to fight for a diagnosis or better care when we have a rare disease… I have been thinking carefully over the last…
This was a post I made last year for awareness month as part of EDS UK’s share your story campaign. Its a little dated in terms of how…
