At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that…
I spend far to much time in hospital waiting rooms, people watching helps to pass the time, keeps me sane. Somewhere between booking in and hearing your name…
Somebody once told me that the 40’s were the best years of their lives. This was way back when I couldn’t imagine being that old! It seems like…
Most people remember falling as a child, even if you have to stretch your mind a little to think that far back. Scabby knees, tripping over your own…
I’m fine. I use this reply all the time when people casually ask me how I am. Is it the truth? What does ‘I’m fine’ really mean… (These…
Shoes, shoes, shoes… Shoes are a girls best friend, you can never have enough, they can make you feel ten feet tall, on top of the world. It’s…
I was diagnosed with CMT by accident after a complication when I had my first baby left my in pain, almost unable to walk. When investigating the cause…
