I’m not usually one for marking anniversaries, not sad ones anyway. But, this week marks three years since the the Grenfell Tower fire which for us marks three years since my son was diagnosed with Myalgic Encephalomyelitis (M.E.)
At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that…
I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress. Different schools, different reasons, different children. I’m in the midst…
[su_dropcap style=”simple”]T[/su_dropcap]he story tells of a prince who wants to marry a princess, but is having difficulty finding a suitable wife. One stormy night a young woman drenched…
Fatigue. Chronic debilitating fatigue. Now I don’t mean being tired, tiredness and fatigue are very different things. We all get tired, our lives are busy, we put far…
Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives…
My kids have pain. It’s real. One of the hardest things for me as a mother is to see them in pain and not be able to magic…
I’ve posted before regarding school. I knew it was a very emotive issue in our house but I was overwhelmed by the passionate responses from other people. My…
This is important and I apologise if this section is a bit heavy but it is a bit of a minefield for parents, particularly those new to the…
